hi, wanted to give you guys an update really quickly.........we have a diagnosis.........she has something called Leukoencephalopathy  it was a reaction to one of her chemo drugs........not an allergy, just her body reacted badly to the drug.......they are giving her another drug to counteract the one that caused this.......it's a rare reaction and there was no way to predict this would happen........the good news is it is reversable  but it is going to take quite awhile.....they said a couple of months to get back to normal.....and in the meantime they have to change her chemo meds.......they are giving her a break from chemo for a week or so but then she will have to restart it.....she came around for awhile last night and talked clearly around 2:30 in the morning while they were doing another mri .......when they took her out of the mri machine she said to me  "mom they were playing Maks and Meryl music in there".....lol.....they were playing Sam Smith music to her during the mri....(I think I love MnM and Sam even more now) .....this morning she lapsed back into another episode again and is still having it,  which they tell me is going to happen quite a bit over the next couple of days or weeks, but we are holding onto the knowledge that it is treatable and will pass.....thanks for all the love and prayers and hand holding.......I will answer all of my pm's as I get a chance ok.......we are going to be in the icu for awhile.......i will update as much as i can.........holding tightly to all of your hands......love you guys (((hugs))))































 

april6263 wrote:

hi, wanted to give you guys an update really quickly.........we have a diagnosis.........she has something called Leukoencephalopathy  it was a reaction to one of her chemo drugs........not an allergy, just her body reacted badly to the drug.......they are giving her another drug to counteract the one that caused this.......it's a rare reaction and there was no way to predict this would happen........the good news is it is reversable  but it is going to take quite awhile.....they said a couple of months to get back to normal.....and in the meantime they have to change her chemo meds.......they are giving her a break from chemo for a week or so but then she will have to restart it.....she came around for awhile last night and talked clearly around 2:30 in the morning while they were doing another mri .......when they took her out of the mri machine she said to me  "mom they were playing Maks and Meryl music in there".....lol.....they were playing Sam Smith music to her during the mri....(I think I love MnM and Sam even more now) .....this morning she lapsed back into another episode again and is still having it,  which they tell me is going to happen quite a bit over the next couple of days or weeks, but we are holding onto the knowledge that it is treatable and will pass.....thanks for all the love and prayers and hand holding.......I will answer all of my pm's as I get a chance ok.......we are going to be in the icu for awhile.......i will update as much as i can.........holding tightly to all of your hands......love you guys (((hugs))))































 

April...I am so glad to hear that you have a diagnosis for the problem that she had and that it was a reaction and it is treatable...I hope with all the prayers and positive thoughts from your family there and here that the recovery will be quick...That is funny that she said they were playing MnM music...What a strong young woman she is...

Just always remember that we are here holding yours and your daughters hand tightly and won't let go...

HUGS to you your daughter and your family...Love you!!!!!

April,
So relieved to hear that this is reversible.  I think your daughter must have a double helping of strength and courage to go through all she has gone through.  You can tell her for me that she is my hero!  Imagine all that she has been through and she is deighted at the M&M music!  My superhero!

View, unobstructed wrote:

Booky wrote:

"Dear friends, do not be surprised at the painful trial you are suffering, as though something strange were happening to you.  But rejoice that you participate in the sufferings of Christ, so that you may be overjoyed when his glory is revealed."  1 Peter 4:12

"But blessed is the one who trusts in the Lord, whose confidence is in him.  They will be like a tree planted by the water that sends out its roots by the stream.  It does not fear when heat comes; its leaves are always green.  It has no worries in a year of drought and never fails to bear fruit."  Jeremiah 17: 7-8 NIV

Thank you for this, Booky.  Such a pleasure to see you on board again. More hands to hold, more strength to share.

Hang out with us this Monday night if you can.  
 

Thanks view!  It's good to be back.  I've missed you guys and really do care about you all.

I have to say, I've been really enjoying this season of DWTS...almost as much as season 18.  There are so many likeable celebs this season and I'm happy that the producers got their act together too...last season was so disjointed and disappointing in the production of the show.  I will definitely be hanging out with you guys tomorrow night.

eastcoast wrote:

April,
So relieved to hear that this is reversible.  I think your daughter must have a double helping of strength and courage to go through all she has gone through.  You can tell her for me that she is my hero!  Imagine all that she has been through and she is deighted at the M&M music!  My superhero!

 I know, EC....that is so awesome!!!  MnM brought us together and MnM are still the glue that holds us together in ways we sometimes don't even know!!   

EVERY ONE of you sisters is simply amazing!  I am truly touched by the ways in which we rally together to support those who need us most....whoever that may be at any time.  From the inspiring quotes, posts, hymns. songs, pictures, to just the simple messages......we are truly a sisterhood and every one of you is very special!

Thanks to each of you for being who you are and for being there whenever anyone is in need.  I know there are a few who don't post, but who lurk and also send their best wishes and love to April, her daughter, Cassidy, View, and others.

Thanks, Gabriele, too for being our night watch(wo)man.  You are always there when we aren't.

My hands are out to each of you in gratitude for your love and  support.

Hugs and love to each of you..........