the ladies room » Summer, the Season between the Seasons

LuvSeason18 · 6/28/2017 9:07 pm

april6263 wrote:
CEK40 wrote:
April...is Niecey awake, I know she is on a vent???
no they have her sedated so she doesn't fight the vent

Probably for the best; however, that has got to be hard.

april6263 · 6/28/2017 9:07 pm

CEK40 wrote:
LuvSeason18 wrote:
april6263 wrote:

they are not sure....they think it could have had some thing to do with the transplant but then my cousin's daughter had a similar auto-immune flair up several years ago (she was 7) to the point she almost died and they never figured out what it was in her either and she didn't have any other health problems at the time...so they are not sure if it is transplant related or not
Could it be something related to hereditary?
That is a good questions Luv...

April...do they think the pneumonia triggered this auto-immune problem...

no just complicating it....but you remember the other flair ups she's had when she's needed chest tubes and things or over reacted to meds....they think those are all the auto-immune response

april6263 · 6/28/2017 9:08 pm

LuvSeason18 wrote:
april6263 wrote:
LuvSeason18 wrote:
Oh........what about Mayo.......have they tried that?
I'm not sure....I know they have consulted Duke
It sounds like the team of Doctors are on top of trying to find out what is wrong.

I pray for answers.

they're doing their best

CEK40 · 6/28/2017 9:09 pm

april6263 wrote:
CEK40 wrote:
LuvSeason18 wrote:

Could it be something related to hereditary?
That is a good questions Luv...

April...do they think the pneumonia triggered this auto-immune problem...
no just complicating it....but you remember the other flair ups she's had when she's needed chest tubes and things or over reacted to meds....they think those are all the auto-immune response

Oh really....

april6263 · 6/28/2017 9:09 pm

LuvSeason18 wrote:
april6263 wrote:
LuvSeason18 wrote:

Could it be something related to hereditary?
at this point they really don't know.....they said what confuses them is if it was hereditary Niecey's transplant should have fixed it....so not sure if the 2 girls reactions were just coincidence or not
Maybe, it is something that is not related to the transplant or cancer. Are they testing her for anything hereditary issues?

yeah but no luck so far....she is testing negative to everything

LuvSeason18 · 6/28/2017 9:10 pm

CEK40 wrote:
april6263 wrote:
CEK40 wrote:

That is a good questions Luv...

April...do they think the pneumonia triggered this auto-immune problem...
no just complicating it....but you remember the other flair ups she's had when she's needed chest tubes and things or over reacted to meds....they think those are all the auto-immune response
Oh really....

So, really the major issue is the auto-immune issues?

april6263 · 6/28/2017 9:10 pm

CEK40 wrote:
april6263 wrote:
CEK40 wrote:
April...is Niecey awake, I know she is on a vent???
no they have her sedated so she doesn't fight the vent
That is probably best for her...Not for you I am sure....
Is your mom with you???

yes....mom's staying at the hospital with me so I don't have to be here alone....and we have had alot of other friends and family in and out

LuvSeason18 · 6/28/2017 9:11 pm

april6263 wrote:
LuvSeason18 wrote:
april6263 wrote:

at this point they really don't know.....they said what confuses them is if it was hereditary Niecey's transplant should have fixed it....so not sure if the 2 girls reactions were just coincidence or not
Maybe, it is something that is not related to the transplant or cancer. Are they testing her for anything hereditary issues?
yeah but no luck so far....she is testing negative to everything

That complicates matters. A person almost wishes that a positive test would show up so they could start fighting that. HUGS

april6263 · 6/28/2017 9:12 pm

CEK40 wrote:
LuvSeason18 wrote:
april6263 wrote:

at this point they really don't know.....they said what confuses them is if it was hereditary Niecey's transplant should have fixed it....so not sure if the 2 girls reactions were just coincidence or not
Maybe, it is something that is not related to the transplant or cancer. Are they testing her for anything hereditary issues?
I wonder if something with the pneumonia maybe the fungal type was a trigger.

no....because they think her other times she has over reacted to meds or developed too much fluid and needed chest tubes and things are all smaller flair ups of the auto-immune thing too

CEK40 · 6/28/2017 9:12 pm

april6263 wrote:
CEK40 wrote:
april6263 wrote:

no they have her sedated so she doesn't fight the vent
That is probably best for her...Not for you I am sure....
Is your mom with you???
yes....mom's staying at the hospital with me so I don't have to be here alone....and we have had alot of other friends and family in and out

That is good you are not there alone...and then you have all of us here with you too...doing as much as we can so very far away...We all wish we could be there with you so badly....We and I am speaking for the "sisterhood" kinda feel helpless....