JetmamaDiDi wrote:
april6263 wrote:
LuvSeason18 wrote:
Will be praying for her. HUGS......and holding your hand.
Yes ….holding your hand
BAck from my Chinese dinner break!!
One of our nieces has POTS!!! I never have quite understood it but she has had a terrible time with it. She is doing better overall now (she is 59) but after she got the diagnosis (following many, many inadequate and incorrect diagnoses) she went to MAYO in Phoenix and they made the diagnosis almost instantly!! She has had quite a struggle with staying well; doesn’t help she is a flight attendant, but she has not been able to work much for some years. Now she has it figured out hos she can just bid a turnaround trip to Portland 8 times a month, which helps with some of the stress triggers. She is home at 10:30PM.
I am so sorry that Star is struggling with that. It is pretty unpredictable. But there are some places where you can get help. If you would like, I can get info from my niece that may be helpful.
Jet, I missed this post in all of the chaos. Thankfully Star pushed hard for a diagnosis. Now it is a matter of managing it. None of her doctors seem very well-versed in it. Yes, any info you can get from your niece would be helpful. Thank you!
"There's good, there's great, and there's Meryl." --Len Goodman
