LuvSeason18 wrote:

HI Ladies, I see we are all gathered around waiting, holding hands and praying.

 
Yes we are Luv...I have spent many hours at the hospital waiting and praying for news on loved ones and it doesn't get any easier no matter how many times you do it, or who your waiting to get news on.  One hour seems like three...

april6263 wrote:

hi guys.....She is still holding her own.....but she is still on the vent and the doc's are saying it is very critical that we start seeing improvement in her breathing this week ....the main problem is she is having a 2 fold problem....the pneumonia and she is having some kind of massive auto-immune response that they don't know what it is....the problem is to treat the auto-immune response they would normally do high dose steroids and they can't do that because if they do it will suppress her immune system and hinder her ability to fight the infection....they are putting out inquiries all over the country trying to find a way to calm down the auto-immune response without hindering her immune system.....if ANY of you ...especially those in other countries (GABRIELE and HRM) know of any treatments they maybe use there that our doc's may not have heard of PLEASE let me know.....LURKERS TOO....and Tennessee Girl I don't know if you still lurk but you once said your hubby had connections in the medical field.....if your lurking and see this would he have ANY ideas???????.....Holding all your hands......seeing her like this is the hardest thing I have ever had to do.....leaning on your shoulders (((group hugs)))

April, do they have a name or "something" for what is going on?  I have a friend who use to work in the medical field.  I have no idea if he can help, but I will ask.  I am send you all of my love, concern, friendship and hand holding.

april6263 wrote:

LuvSeason18 wrote:

april6263 wrote:

hi guys.....She is still holding her own.....but she is still on the vent and the doc's are saying it is very critical that we start seeing improvement in her breathing this week ....the main problem is she is having a 2 fold problem....the pneumonia and she is having some kind of massive auto-immune response that they don't know what it is....the problem is to treat the auto-immune response they would normally do high dose steroids and they can't do that because if they do it will suppress her immune system and hinder her ability to fight the infection....they are putting out inquiries all over the country trying to find a way to calm down the auto-immune response without hindering her immune system.....if ANY of you ...especially those in other countries (GABRIELE and HRM) know of any treatments they maybe use there that our doc's may not have heard of PLEASE let me know.....LURKERS TOO....and Tennessee Girl I don't know if you still lurk but you once said your hubby had connections in the medical field.....if your lurking and see this would he have ANY ideas???????.....Holding all your hands......seeing her like this is the hardest thing I have ever had to do.....leaning on your shoulders (((group hugs)))

April, do they have a name or "something" for what is going on?  I have a friend who use to work in the medical field.  I have no idea if he can help, but I will ask.  I am send you all of my love, concern, friendship and hand holding.

no and that's part of the problem....they feel like it is something rare because she is testing negative for all the things they have run tests on.....if we could put a name to the auto-immune thing it would help them know how to treat

Oh...okay, I will try and give him all of the things that you have mentioned. 

LuvSeason18 wrote:

april6263 wrote:

LuvSeason18 wrote:

April, do they have a name or "something" for what is going on?  I have a friend who use to work in the medical field.  I have no idea if he can help, but I will ask.  I am send you all of my love, concern, friendship and hand holding.

no and that's part of the problem....they feel like it is something rare because she is testing negative for all the things they have run tests on.....if we could put a name to the auto-immune thing it would help them know how to treat

Oh...okay, I will try and give him all of the things that you have mentioned. 

thank you so much....if we can put a name to it or find an alternative way to treat it, it would help alot

LuvSeason18 wrote:

I wish I could be there to hold your hand while you and your family are going through this.  We sisters have been praying and checking the MB all day.  If you ever need ANYTHING, just let us know.  We are here for you.

thank you so much....you guys are amazing.....I am holding on by faith...(((squeezing your hands)))