meryl/maks

You are not logged in. Would you like to login or register?



  • Index
  •  » General Discussion
  •  » Summer, the Season between the Seasons

    • 1 … 83 84 85 86 87 … 405  Jump to

     

    6/28/2017 9:32 pm  #841

    CEK40
    Moderator

    Offline

    Registered: 7/14/2014
    Posts: 62,680

    Re: Summer, the Season between the Seasons

    LuvSeason18 wrote:

    april6263 wrote:

    CEK40 wrote:


    That is good you are not there alone...and then you have all of us here with you too...doing as much as we can so very far away...We all wish we could be there with you so badly....We and I am speaking for the "sisterhood" kinda feel helpless....

    you guys are helping me so much more than you could know.....you guys give me a place I don't have to be the rock for everyone and can just lean on some one else for a bit .....and that is huge

    You just be you.....and say what ever you need to say.....feel...or whatever.....we will be glad to "carry you" in whatever way we can. 

    Absoutely...You can be just plain April when you are here with us...you don't have to pretend to be someone or something you arent...We are here for you however you need us....

    Ah, it is. It's the first day of autumn! A time for hot chocolatety mornings, and toasting marshmallow evenings, as best of all, leaping into *leaves*!
    —Winnie the Pooh
     

    6/28/2017 9:33 pm  #842

    CEK40
    Moderator

    Offline

    Registered: 7/14/2014
    Posts: 62,680

    Re: Summer, the Season between the Seasons

    april6263 wrote:

    CEK40 wrote:

    april6263 wrote:


    not sure but I will ask her doc tomorrow

    There is also an article done by Childrens Hospital of Philadelphia I am reading it now...it is pertaining to an autoimmune blood disease...don't know if that is what she may have or not....I just saw that it has mentioned treating patients that can't take corticosteroids...

    can you email me the link to it?????

    I sure will....

    Ah, it is. It's the first day of autumn! A time for hot chocolatety mornings, and toasting marshmallow evenings, as best of all, leaping into *leaves*!
    —Winnie the Pooh
     

    6/28/2017 9:33 pm  #843

    april6263
    Member

    Offline

    Registered: 7/15/2014
    Posts: 55,764

    Re: Summer, the Season between the Seasons

    LuvSeason18 wrote:

    april6263 wrote:

    LuvSeason18 wrote:


    You just be you.....and say what ever you need to say.....feel...or whatever.....we will be glad to "carry you" in whatever way we can. 

    thank you so much.....I have been playing her Beatles music .....hoping that if she hears it it will somehow sooth her

    I am sure she can.  They say people can hear things when even in a coma.

    yeah and she loves the Beatles

     

    6/28/2017 9:33 pm  #844

    LuvSeason18
    Member

    Offline

    Registered: 7/14/2014
    Posts: 46,109

    Re: Summer, the Season between the Seasons

    april6263 wrote:

    LuvSeason18 wrote:

    april6263 wrote:


    not sure but I will ask her doc tomorrow

    Maybe it is something so rare that some doctors are not aware of it.....is there a website or something that might list rare disorders??

    that's what they are thinking.....or maybe even something more commonly seen in another country

    I know that you mentioned that it wasn't related to the transplant....but, could the donor have had "something strange" in the marrow.  Him being from another country might be an answer.  Can the doctors contact the donor and find out more about his history and ever his hereditary issues?  I am not sure if that would be passed on to Niecey......but it is another idea to toss out.

    Friendship is a priceless gift that can't be bought or sold, its value is far greater than a mountain made of gold.
    May this FriendSHIP always have wind in its sails and a sunrise on the horizon.
     

    6/28/2017 9:35 pm  #845

    april6263
    Member

    Offline

    Registered: 7/15/2014
    Posts: 55,764

    Re: Summer, the Season between the Seasons

    CEK40 wrote:

    LuvSeason18 wrote:

    april6263 wrote:


    you guys are helping me so much more than you could know.....you guys give me a place I don't have to be the rock for everyone and can just lean on some one else for a bit .....and that is huge

    You just be you.....and say what ever you need to say.....feel...or whatever.....we will be glad to "carry you" in whatever way we can. 

    Absoutely...You can be just plain April when you are here with us...you don't have to pretend to be someone or something you arent...We are here for you however you need us....

    thanks.....I'm me where ever I am.....but I tend to be the rock (as most mom's are), you know....and well you guys give me a place where I don't feel the need to be the strong one, ya know

     

    6/28/2017 9:36 pm  #846

    april6263
    Member

    Offline

    Registered: 7/15/2014
    Posts: 55,764

    Re: Summer, the Season between the Seasons

    CEK40 wrote:

    april6263 wrote:

    CEK40 wrote:


    There is also an article done by Childrens Hospital of Philadelphia I am reading it now...it is pertaining to an autoimmune blood disease...don't know if that is what she may have or not....I just saw that it has mentioned treating patients that can't take corticosteroids...

    can you email me the link to it?????

    I sure will....

    thanks ...I will show it too her doc tomorrow

     

    6/28/2017 9:36 pm  #847

    CEK40
    Moderator

    Offline

    Registered: 7/14/2014
    Posts: 62,680

    Re: Summer, the Season between the Seasons

    I sent you an email April....

    Ah, it is. It's the first day of autumn! A time for hot chocolatety mornings, and toasting marshmallow evenings, as best of all, leaping into *leaves*!
    —Winnie the Pooh
     

    6/28/2017 9:38 pm  #848

    april6263
    Member

    Offline

    Registered: 7/15/2014
    Posts: 55,764

    Re: Summer, the Season between the Seasons

    LuvSeason18 wrote:

    april6263 wrote:

    LuvSeason18 wrote:


    Maybe it is something so rare that some doctors are not aware of it.....is there a website or something that might list rare disorders??

    that's what they are thinking.....or maybe even something more commonly seen in another country

    I know that you mentioned that it wasn't related to the transplant....but, could the donor have had "something strange" in the marrow.  Him being from another country might be an answer.  Can the doctors contact the donor and find out more about his history and ever his hereditary issues?  I am not sure if that would be passed on to Niecey......but it is another idea to toss out.

    they are actually already checking into that....but so far nothing has turned up....they are focused for right now on finding a way to calm down the auto-immune response

     

    6/28/2017 9:39 pm  #849

    april6263
    Member

    Offline

    Registered: 7/15/2014
    Posts: 55,764

    Re: Summer, the Season between the Seasons

    CEK40 wrote:

    I sent you an email April....

    thanks Cek (((hugs)))

     

    6/28/2017 9:40 pm  #850

    LuvSeason18
    Member

    Offline

    Registered: 7/14/2014
    Posts: 46,109

    Re: Summer, the Season between the Seasons

    I am going to log off and try to write down everything that I need to ask my friend.

    April, I am holding your hand tightly........HUGS........LOVE.......and PRAYERS are being sent your way.

    I will try to be back before I turn in for the night, just so you are not waiting for an answer from me.

    Take care.

    Friendship is a priceless gift that can't be bought or sold, its value is far greater than a mountain made of gold.
    May this FriendSHIP always have wind in its sails and a sunrise on the horizon.
     

     

    1 … 83 84 85 86 87 … 405  Jump to

  • Index
  •  » General Discussion
  •  »  Summer, the Season between the Seasons

    • Board footera

     

    Powered by Boardhost. Create a Free Forum