april6263 wrote:

LuvSeason18 wrote:

april6263 wrote:

that's what they are thinking.....or maybe even something more commonly seen in another country

I know that you mentioned that it wasn't related to the transplant....but, could the donor have had "something strange" in the marrow.  Him being from another country might be an answer.  Can the doctors contact the donor and find out more about his history and ever his hereditary issues?  I am not sure if that would be passed on to Niecey......but it is another idea to toss out.

they are actually already checking into that....but so far nothing has turned up....they are focused for right now on finding a way to calm down the auto-immune response

Sounds like a good team of Doctors..........okay, going to try and call my friend in a few minutes.  HUGS

Well I think I am going to go for tonight...I know we are all relieved to hear from April tonight and we will all continue to stand beside her and to continually look to help find a answer to help Niecey heal.  
As we continue to pray for healing we now will add prayers for the medical staff that are trying to find answers too...

Good night my dear Sisters, try to get some rest and I hope your dreams are good ones...
Till tomorrow....HUGS

april6263 wrote:

I am going to have to run for now.....but thank you all so much for all the love and support and if anyone has any ideas of how they can calm down the auto-immune response without compromising her immune system please just PM me (((group hugs)))

In the past two years, I have learned a lot about auto-immune issues.  The reality is that auto-immune issues begin in the gut.  The culprits that work together to create the problem are antibiotics---when a lot are used; processed sugar and the majority of sugar substitutes (aspartame is a huge culprit in auto-immune issues; and all processed foods.   I will get someone who knows a lot more than I do involved and who can recommend Doctors, hospitals and clinics who know what regimen can be used to quiet the auto-immune response.  They can talk with you and directly with Niecey's doctors, if you wish.  I have already sent a text message tonight and will talk to folks tomorrow.   

Continuing to pray because it is true that "More things are wrought by prayer than this world dreams of."
Lots of good wishes and love to you, April, and Niecey.   

Meant to say that I am signing off but will log in from time to time tomorrow.   Gabriele, I have so much respect for moms like you.  The regular relief my friends and I had was to have each other's kids come over and play.  Once they were four years old, it was noisy but wonderful.  I imagine that this cannot be a regular option for you.  Somewhere along the line, you should be getting a crown.  Is there music that your little guy likes?

Last edited by KeepOnSinging (6/28/2017 11:48 pm)

April, I have posted in a group of 35,000 people, most of whom research medical issues of their own children and discuss these in the group.  I have asked for prayers as well as I thought you would appreciate.  

Last edited by gabriele (6/29/2017 12:16 am)

Actually, April.... I don't know any medical practitioners in Germany.  But just remembering that a very good and long-time friend works in a hospital as assistant to the medical director.  I've just send her an e-mail.