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april6263 wrote:
hi, wanted to give you guys an update really quickly.........we have a diagnosis.........she has something called Leukoencephalopathy it was a reaction to one of her chemo drugs........not an allergy, just her body reacted badly to the drug.......they are giving her another drug to counteract the one that caused this.......it's a rare reaction and there was no way to predict this would happen........the good news is it is reversable
but it is going to take quite awhile.....they said a couple of months to get back to normal.....and in the meantime they have to change her chemo meds.......they are giving her a break from chemo for a week or so but then she will have to restart it.....she came around for awhile last night and talked clearly around 2:30 in the morning while they were doing another mri .......when they took her out of the mri machine she said to me "mom they were playing Maks and Meryl music in there".....lol.....they were playing Sam Smith music to her during the mri....(I think I love MnM and Sam even more now) .....this morning she lapsed back into another episode again and is still having it, which they tell me is going to happen quite a bit over the next couple of days or weeks, but we are holding onto the knowledge that it is treatable and will pass.....thanks for all the love and prayers and hand holding.......I will answer all of my pm's as I get a chance ok.......we are going to be in the icu for awhile.......i will update as much as i can.........holding tightly to all of your hands......love you guys (((hugs))))
A huge sigh of relief, April....although I know the coast is far from clear. Hang in there....love you, kiss your daughter, and tell her that MnM are great therapy!!! They brought us together and they hold us together while we hold your hands. What more could we ask for?!
XX OO XX OO
Last edited by JetmamaDiDi (5/03/2015 4:13 pm)
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april6263 wrote:
hi, wanted to give you guys an update really quickly.........we have a diagnosis.........she has something called Leukoencephalopathy it was a reaction to one of her chemo drugs........not an allergy, just her body reacted badly to the drug.......they are giving her another drug to counteract the one that caused this.......it's a rare reaction and there was no way to predict this would happen........the good news is it is reversable
but it is going to take quite awhile.....they said a couple of months to get back to normal.....and in the meantime they have to change her chemo meds.......they are giving her a break from chemo for a week or so but then she will have to restart it.....she came around for awhile last night and talked clearly around 2:30 in the morning while they were doing another mri .......when they took her out of the mri machine she said to me "mom they were playing Maks and Meryl music in there".....lol.....they were playing Sam Smith music to her during the mri....(I think I love MnM and Sam even more now) .....this morning she lapsed back into another episode again and is still having it, which they tell me is going to happen quite a bit over the next couple of days or weeks, but we are holding onto the knowledge that it is treatable and will pass.....thanks for all the love and prayers and hand holding.......I will answer all of my pm's as I get a chance ok.......we are going to be in the icu for awhile.......i will update as much as i can.........holding tightly to all of your hands......love you guys (((hugs))))
Yes !!! I am so happy to hear that the Drs. know what cause the symptoms/problems but most importantly, that it is reversible. I know that you and your family are so relieved to hear that.
LOL, I love your daughter April, her saying that they were playing MnM music was fantastic. Sometimes, I wish that they knew just how important they were in bringing us all together and how they still can bring smiles to our faces in times of stress. Give our "niece" a hug from all of us sisters. So glad for the update........love and hugs to all of you.
Last edited by LuvSeason18 (5/03/2015 4:40 pm)
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Hi Booky !!!
I have missed you and am so glad that you are back. Mondays are great here. The chats are upbeat and so many sisters are on at the same time. April and her daughter watched and "chatted with us too" and we all would say hi to her and she would "say hi" back. That is sort of how she became "our niece"
There are a lot of good couples this year. I think Rumer will win, but I am finding the others just as enjoyable. I really like Noah and Robert is such a sweetheart. I love his smile and "happiness" that he has when he is dancing. I do kind of thnk that maybe Chris and Robert will be the next to go, but after last week.....anything can happen. LOL Anyway, I hope that you can join us tomorrow. Glad you are back.
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Who do you think this is?
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juuuust a little bump.
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april6263 wrote:
hi, wanted to give you guys an update really quickly.........we have a diagnosis.........she has something called Leukoencephalopathy it was a reaction to one of her chemo drugs........not an allergy, just her body reacted badly to the drug.......they are giving her another drug to counteract the one that caused this.......it's a rare reaction and there was no way to predict this would happen........the good news is it is reversable
but it is going to take quite awhile.....they said a couple of months to get back to normal.....and in the meantime they have to change her chemo meds.......they are giving her a break from chemo for a week or so but then she will have to restart it.....she came around for awhile last night and talked clearly around 2:30 in the morning while they were doing another mri .......when they took her out of the mri machine she said to me "mom they were playing Maks and Meryl music in there".....lol.....they were playing Sam Smith music to her during the mri....(I think I love MnM and Sam even more now) .....this morning she lapsed back into another episode again and is still having it, which they tell me is going to happen quite a bit over the next couple of days or weeks, but we are holding onto the knowledge that it is treatable and will pass.....thanks for all the love and prayers and hand holding.......I will answer all of my pm's as I get a chance ok.......we are going to be in the icu for awhile.......i will update as much as i can.........holding tightly to all of your hands......love you guys (((hugs))))
Sweet, sweet April ... sending you strength. xoxo
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Booky wrote:
View, unobstructed wrote:
Booky wrote:
"Dear friends, do not be surprised at the painful trial you are suffering, as though something strange were happening to you. But rejoice that you participate in the sufferings of Christ, so that you may be overjoyed when his glory is revealed." 1 Peter 4:12
"But blessed is the one who trusts in the Lord, whose confidence is in him. They will be like a tree planted by the water that sends out its roots by the stream. It does not fear when heat comes; its leaves are always green. It has no worries in a year of drought and never fails to bear fruit." Jeremiah 17: 7-8 NIVThank you for this, Booky. Such a pleasure to see you on board again. More hands to hold, more strength to share.
Hang out with us this Monday night if you can.
Thanks view! It's good to be back. I've missed you guys and really do care about you all.
I have to say, I've been really enjoying this season of DWTS...almost as much as season 18. There are so many likeable celebs this season and I'm happy that the producers got their act together too...last season was so disjointed and disappointing in the production of the show. I will definitely be hanging out with you guys tomorrow night.
Booky it is good to see you with us. You have been misses and I hope that you will stay with us...
I agree with you I have enjoyed this season too. I am glad that you will be with us tomorrow night.
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JetmamaDiDi wrote:
eastcoast wrote:
April,
So relieved to hear that this is reversible. I think your daughter must have a double helping of strength and courage to go through all she has gone through. You can tell her for me that she is my hero! Imagine all that she has been through and she is deighted at the M&M music! My superhero!I know, EC....that is so awesome!!! MnM brought us together and MnM are still the glue that holds us together in ways we sometimes don't even know!!
![]()
EVERY ONE of you sisters is simply amazing! I am truly touched by the ways in which we rally together to support those who need us most....whoever that may be at any time. From the inspiring quotes, posts, hymns. songs, pictures, to just the simple messages......we are truly a sisterhood and every one of you is very special!
Thanks to each of you for being who you are and for being there whenever anyone is in need. I know there are a few who don't post, but who lurk and also send their best wishes and love to April, her daughter, Cassidy, View, and others.
Thanks, Gabriele, too for being our night watch(wo)man. You are always there when we aren't.
My hands are out to each of you in gratitude for your love and support.
Hugs and love to each of you..........
Jet I must second everything you said. We are truly blessed to have each other in our lives. Yes, and to Gabriele thank you for being there watching over us while we sleep...
Love to you all...
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eastcoast wrote:
April,
So relieved to hear that this is reversible. I think your daughter must have a double helping of strength and courage to go through all she has gone through. You can tell her for me that she is my hero! Imagine all that she has been through and she is deighted at the M&M music! My superhero!
I agree that she (and you) are heroes, and there's Maks and Meryl music also, as they danced to "Heroes" during the 10-year-celebration! So happy to have this news from you.
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april6263 wrote:
hi, wanted to give you guys an update really quickly.........we have a diagnosis.........she has something called Leukoencephalopathy it was a reaction to one of her chemo drugs........not an allergy, just her body reacted badly to the drug.......they are giving her another drug to counteract the one that caused this.......it's a rare reaction and there was no way to predict this would happen........the good news is it is reversable
but it is going to take quite awhile.....they said a couple of months to get back to normal.....and in the meantime they have to change her chemo meds.......they are giving her a break from chemo for a week or so but then she will have to restart it.....she came around for awhile last night and talked clearly around 2:30 in the morning while they were doing another mri .......when they took her out of the mri machine she said to me "mom they were playing Maks and Meryl music in there".....lol.....they were playing Sam Smith music to her during the mri....(I think I love MnM and Sam even more now) .....this morning she lapsed back into another episode again and is still having it, which they tell me is going to happen quite a bit over the next couple of days or weeks, but we are holding onto the knowledge that it is treatable and will pass.....thanks for all the love and prayers and hand holding.......I will answer all of my pm's as I get a chance ok.......we are going to be in the icu for awhile.......i will update as much as i can.........holding tightly to all of your hands......love you guys (((hugs))))
Oh, wow, April, I'm so sorry she's going through this, but I'm glad they figured out what was wrong. I'm sending you both hugs and prayers.